So since I've had more free time lately, I've been trying to find things to do - especially things for people my age with cancer - and other than the Wellness Community http://www.wellnesscommunity.org/index.html there isn't anything. I've looked for blogs, websites, events and I don't know where everyone in the Boston area with Hodgkin's are hiding! It supposedly happens to people either my age or in their 50s, and I've sorta found the people in their 50s -- yeah they're at the Wellness Community -- but I don't know where the people my age are hiding.
The Wellness Community seems pretty great, they offer support groups, yoga, painting and other stuff there - I just happened to find it the day they were doing the Lymphoma support group, however, it only happens once a month. There were only 3 other people in the support group, and each of them had at least 20 years on me. I mean, don't get me wrong, we still had a lot in common - but I'm definitely in a different place in my life than they are. They said more people used to come to the group, but it had slowed down lately. I just looked at the calendar of events there http://www.wellnesscommunity.org/calendar.html and it looks like they're doing a Look Good Feel Better next Tuesday. I was hoping to find one to go to this month but I'm disappointed that it's on Tuesday, I usually start to feel like crap on Tuesday nights so I'm going to want to hide out at my parents house and not be out and about. Sad lamb.
So anyways, back to my frustration. So I've emailed the Leukemia and Lymphoma Society asking what they're doing in the area, and also kinda said I'd like to talk with them about doing something. I mean sheesh. All of these places do tons of fundraisers - I actually interviewed with the Society right after I got out of college - they do the Team In Training marathons and make tons of money - so I'm wondering what the money is used for? I also emailed Look Good Feel Better because their website is terrible, there isn't a listing of the events - so how the hell are you supposed to know when to go!!? So far, both haven't gotten back to me. It's pretty frustrating to sift thru all of the clutter online.
I'm really hoping to meet some people at the I'm Too Young For This event on March 31st. I'm also hoping people find this blog and contact me to organize stuff. I think I'm going to try and meet with someone from the Wellness Community at some point. They said they used to have a Young Adults support group - but no one would go because it was at 6pm on weekday - but my thought is, if you have cancer there's a good chance you're not working, so what are you doing?!
Stay tuned for updates.