Hey everyone,I got back from the Lymphoma "dude" at Dana Farber this afternoon, and first of all, he didn't think I have shingles on my hands (even though they look really bad now! kinda like a pickle!) he thinks it's either "dermatitis" or poison ivy -- even though I haven't been near any, but since it's on my fingers and elbows, he thinks it's a bit strange. So I'm still taking my drugs, and he said I'm not contagious, so I'm going to try and play softball with work - let's hope they don't look at my pickle fingers!
Secondly, as for my "spot" on my PET scan, I mentioned thymic rebound, and he thought it was very possible to be thymic rebound, and honestly, he wasn't terribly concerned about the spot. He said to just do the waiting and get my PET scan at the end of August as scheduled, and then to come and see him with the results. He said the biopsy would be hard to do since it's tough to get thru my scar tissue, but if it lights up again, we should biopsy to know what we're dealing with.
So all in all, pretty positive. He said I have something like a 76% chance of being totally done with the hodge since I had no risk factors like being male (weird huh), stage 4, and one more thing I forgot. Anywho, that's my update!