Sunday, September 30, 2007

Damaged Goods

Lately, I feel like I'm damaged goods. All I want is to go on a date with someone, or have someone have a little crush on me, 10th grade style. I feel like I look so buttoned up lately with my terrible pulled back hair that needs to be gelled back so that the short pieces don't pop thru... ugh. Know any slutty dudes that like cancer chicks??? Or just dudes that want to snuggle with me and watch movies? If so, please send them my way, thanks!

I think tonight is going to be a lazy night. I feel like lighting a bunch of candles and taking a long, hot bath and maybe watching a sappy movie. Yep, sounds terrific! Maybe I'll even mix myself up a fancy drink.... okay, this is me cutting it short because I'm going to be lame.

XO

Bekah's Dinner Party Tonight

Well the girls night was called off today via text message. Kinda lame, I was bummed, but I'm glad I didn't sit around feeling crappy all night. I went to Bekah's dinner party and ate tons of really good food and had a great time! Thanks again Bekah for having me at your party, it was great to meet all of your friends, and of course see you again -- not wearing a hat :)

I slept nice and late today until around 1pm, which was well needed! Then I decided to do some laundry and put clean sheets on my bed, yay! It's a little past 1am now, so I'll probably try and hit the hay soon, just wanted to post a quick update. I'm hanging out with Mandy tomorrow, and we might even try and get some tennis in if the weather is good. Dad is going to Block Island tomorrow, and I'm going to go at some point next week. We're having a Canadian Thanksgiving next weekend on Block Island. My cousin Roland is coming from Canada, and a bunch of family members are coming out as well. Should be a good family get-together kinda time.

I hope all is well with everyone!! I want to have a mini party soon, maybe weekend after next?? A little Nintendo Wii, maybe some cards, maybe some kareoke? I just feel like I haven't been seeing my friends lately and that I'm due for some fun!

XO!

Friday, September 28, 2007

Busy Busy Busy!!!

I'm feeling better now that I spent the entire day sleeping!! Yay! I just got back to Burlington this evening. I had dinner with Lynda and Sydne (I guess I'm friends with chicks with y's in their names!) - we went to the Cheesecake Factory, I had only eaten there once before like 10 years ago, but everyone talks about how AMAZING it is, so why not... it was good, but not amazing like everyone talks about. The desert (strawberry shortcake) and the mashed potatoes were probably the best parts of my meal -it's a total toss up! We were there for a couple hours, the time just flew by! It was good to see them and catch up, oh and they brought me new business cards from work!! Ha ha! They changed our logos and website, so everyone got new cards and fancy pens! I love that they're still making stuff for me even though I'm gone! And, who knows, I might be back soon... but I'm still going to start part time when I go back, because it's totally going to kick my ass!

Tomorrow I'm going to have a girls night slumber party with Sydne and Lynda which should be fun! We might even go out for drinks or something, oh and of course, play Nintendo Wii!! Man, I wish I had Nintendo Wii when I was a kid, I woulda had waaaay more friends, just kidding!
One a more serious note, I've been meaning to mention this for a week, but kept forgetting. If you know anyone that is looking to do a good deed, click here. There is a man with stage 4 non-hodgkin's lymphoma, who is "selling" his cancer on eBay. Right now, he's only at $242.50, he's got 3 kids and although I don't know him, his story intrigues me. Please pass the link on to your friends, especially if they're feeling charitable, thanks!

Oh and one more new chemopalooza fact - my blog hit numbers have almost doubled in the past 2 weeks, before I was around 30-50 hits a day, and now I'm almost at 80 a day!!! Yay! I heart new readers and the amount of comments I've been getting lately! Thanks everyone for the support, and of course, for reading my randomness! Oh and about that wig that you all love - you have no idea how terribly hot it was!!! If the were mine, I would chop a ton of the hair off, probably to my shoulders, otherwise I would be a sweaty disaster wearing it! But it's always good to hear you look good, so thanks!! It really did look like my old hair. Soon enough folks, soon enough!! One more thing, I'm pretty sure I still owe a billion email replies and phone calls, stay tuned, I'm sorry it's taking me so long, I've been super busy and I promise I'm not ignoring you!

XO!

Thursday, September 27, 2007

I'm Back From New York!

Hi everyone!!Thanks for checking in on me, I apologize to leave you all in limbo, but I figured it was time to go see some sights of New York, pretend that I don't have cancer and pretend I don't look like someone tried to slice my neck.

Here's the latest, but NOT the official update:
As you know, when I woke up from surgery the surgeon told me that what they took from my thymus was *most likely* Hodgkin's because it looked just like it under the microscope - but obviously, they had to do the official tests on it to be official...Then my onc told me he would probably know by Tuesday, so he actually called me while I was on the bus going to NYC, and this is how our conversation went:

Me: Hello?
Lymphoma Dude: Hi Kelly
Me: How are you Dr. Fisher?

Lymphoma Dude: I'm doing good, and I think you are too!
Me: Huh???
Lymphoma Dude: As of right now, it's not showing up as Hodgkin's, just thymus - weird I know. I even asked about the frozen section that they thought was Hodgkin's, and so far it's not showing anything...you'll have to wait for the official news since I'm having them go thru all of the nodes to make sure there's no Hodgkin's on the edge or anything - hopefully I'll know by Thursday.

***

Soooo it's Tuesday, and they don't have any official results for me yet and said it's taking a little longer for some of their tests and I should hopefully know next week, around Wednesday. Anyways, I don't really believe I'm clean. People were telling me to celebrate, but really it just makes me want to get another biopsy of the spot they didn't biopsy. So in a nutshell, that's the latest and greatest.

As for my trip to NYC, it was fun but REALLY hot and humid, and ugh yuck - I can't deal with walking around sweating buckets all day - I don't know how you city folks do it! I got to meet Sandy and stay at her apartment in Astoria (thanks again Sandy!!) we went to the I'm Too Young For This comedy show that I scored free tickets to (thanks Matthew Zachary!) - we actually got REALLY good front row seats too! The comedians were super funny, the drinks were free -- damn cancer, wish I had more energy to drink! -- but I still got one fancy drink (a pomegranate martini). I also got to meet Matthew Zachary who runs I'm Too Young For This, when we met, I said "Hi, I'm Kelly," and he just shook my hand and pretended he knew me, so then I said, "Ya know, chemopalooza.com," and his face lit up and he says, "Oh Kelly Kane!!! We get so many hits on our site from your website!! You should do my radio show sometime, let's figure it out!" So hoooray, I'm going to be on his radio show at some point, it's called the Stupid Cancer Show and he's had celebrity and other amazing cancer fighters on his show. Check it out, you can set it up on your itunes to download automatically, by clicking here.

Then the next day I did some sight seeing, sweated some more, met Jason Kelly, a reporter I used to work with (ya know, when I was working) who I always had a deal with that we would meet in person if we were ever near each other-- so I obviously had to, duh. Plus I got to see how swank the Bloomberg office is. Then I did some more sight seeing, met Sandy for dinner then went to a Broadway show called The Ritz which had half naked gay men in little towels (hooray!). Today I met my pal Arik that works at BusinessWeek, who like Jason Kelly, I've never met in person, so obviously had to. Then I thought I would do some more sight seeing, but once I got outside, I decided that it was just too humid and headed back home because it was just too hot to deal!
I hope I covered everything. I totally get to check NYC off of my to-do list! I think I'm going to head to Burlington tomorrow to check my mail and maybe be social?...I'm not sure yet though... I also might go to a work event as well. Anywho, I gotta stop typing because my lap is getting hot! I hope you are all well, and yes, I owe a bunch of email replies to you all - probably tomorrow.

Oh and one last funy picture... me in one of Sandy's wig, looking very "normal" except for the slash in my neck :)














XO

Monday, September 24, 2007

I'm Going To New York!


I have a confession to make... I've never actually been to New York. I know, I know!! But I've never had a reason to go, so I just haven't gone. Lame excuse, but it's true. Anyways, I'm going tomorrow! I figured I might as well check some things off of my to-do list while I have some energy. I got free tickets to the I'm Too Young For This comedy show, so I'm going to take the bus to NYC and then meet up with Sandy, grab some dinner, go the show, and then stay at her apartment. Then, Wednesday, I'm going to be a tourist while she's working, I figure I'll just go to one of those sight seeing tour thingy's. Should kill some time, and maybe I'll even get to meet some of my old reporter pals or other cancer fighters :) It's pretty spur of the moment in planning, so I might not get to do everything. I'm totally going to bring my camera and just have fun :)


Anywho, I'm leaving around 1 tomorrow, arriving around 5ish, ready to party! Oh and I find out the results of my biopsy most likely tomorrow - but I pretty much already know the answer, so oh well.

XO

Sunday, September 23, 2007

I've Cut Down To A Few Packs A Day

Hi everyone, sorry I've been a little scarce these past few weeks with posting. My voice is getting better, but my throat still hurts and I'm still coughing a lot, I sometimes have to hold onto something when I could because I'm scared I'm going to pop open my stitches. I'm wearing this giant bandaid on my throat - I wonder if I took it off and drank something if it would pop thru - ha ha, I'm obviously kidding, but wouldn't it be funny... like that movie Deuce Bigalow or something.

I napped most of today, and slept kinda crappy last night. I actually went to bed before 10pm the last 2 nights, which is amazingly rare for me, I'm usually up until at least 1am. The first night I slept on my couch at my apartment (and if you've been there, you know it's amazingly comfy) so that I wouldn't try to sleep on my side and be in more pain. Last night I slept at my parents house, and slept on my side like normal, but with a giant stuffed animal for padding. I think I might be up to driving by tomorrow...? I can turn my head enough to get around, I think.

I'm amazed with myself, I guess because I've had so much waiting, and such a strong gut feeling that the hodge was back, that I actually haven't freaked out since surgery yet -- no crying, nothing! And I cry like it's my job lately, so I'm amazed with myself. I'm just waiting until Tuesday to find out the news. But I have a strong feeling that it'll be confirmed that it's officially back. I decided if it is back, and I have to go thru a stem cell transplant and terrible chemo, that I'm not going to rush into it. I'm going to request at least 2-3 weeks before chemo starts. I want to get some fun in before my life goes to shit. Maybe another pre-chemopalooza too? I dunno, it's a possibility.

Anywho, I think I'm going to go try and do something now, so I'll write more, maybe later tonight.

XO

Friday, September 21, 2007

The Good And The Bad

Hi Everyone,

Here's the good news: I'm still alive after the surgery!!!

The bad: I met with the surgeon once I woke up, and she told me they biopsied a spot on my thymus (they couldn't get at the initial spot because of a major artery over it) but said it was a cluster of lymph nodes and they looked like Hodgkin's -- she said something like she's 90% sure.

My onc said he's "Concerned that it looks like Hodgkin's, but it's not over til the fat lady sings" but pretty much, I'm fairly sure that my gut feeling was right. My onc said he would call me when he has an answer, which he thinks will be about Tuesday.

Right now my throat is super sore, I have a headache, am super sleepy, and I sound like I chain smoked cigarettes with Courtney Love all day. HA!

Thanks for the happy thoughts everyone!!

XO

Thursday, September 20, 2007

Pre Surgery

Hi Everyone,

Just a quick post before I head to my parents house. Thanks everyone for the nice comments, emails and happy thoughts. I kept myself completely busy today, got up, tried to find a piercing place to take out my belly button ring, went to the random place that I found only to be stood up by the owner, went to my massage and then went to Meg's to get her to take it out (phew!) and then came home, went and bought some antibacterial body wash, took a shower, cleaned my apt, went out to dinner with my friend Jim from college that I haven't seen in a few years, came back to my apartment and kicked his ass at Wii for a few hours (seriously, boxing is a total body workout!!) and now am getting ready to drive to Longmeadow....so really long day, which is just what I wanted! YAY!

So I'm off to surgery tomorrow morning, we're going to leave around 6 or 7am so that we can make it there by 9am for surgery to start at 10:30am. Hopefully all goes smoothly and I'll be done with surgery by 1pm, but who knows. I'm freaked out, but you all already know that. I gotta take my fancy nail polish off too - what a waste of a manicure! That's okay, I'll go to my dude down the street from my parents, he's a bargain!

Well, I think I'm off. I'm sorry I haven't posted much this week, I've been all over the place, literally and figuratively. I did actually get a decent nights sleep last night, so hopefully that'll make things a little better. I just gotta pack some PJs and I'm off. Thanks again everyone for all the happy thoughts, I love you all! Oh and I have to tell you about the hilllarious email that went around at my work today when I log back on -- I was totally nominated for homecoming queen at work, hilllarious. But the cancer card didn't work and I still lost the competition, it also probably helps if I would have actually shown up!

Okay that's all for now, XO!!!!

Wednesday, September 19, 2007

I Can't Sleep...

It's 4:41am and I can't sleep, so I decided it was time to post something. It's weird, I've been the anti-poster lately, on here and the lymphoma board, I just don't have the energy to write for some reason this week. I'm super exhausted lately and it's to the point that I feel like I'm blacking out when it's bed time and not remembering stuff like I was super drunk or something (but not). I also, all of a sudden have no memory, like delayed chemo brain, it's pretty fucked up! And of course, I'm getting itchier lately, which makes me worry about what lies ahead, since why else could I be so friggin' itchy other than the hodge is back... ugh

Tomorrow I go in for my pre-surgery meeting for blood work, an EKG, and a meeting with the anesthesiologist. I'm going by myself, I hope that's okay and that it's not anything too overwhelming. I'm going to bring some paper to take notes, but sometimes (especially lately) I space out and can't take good notes. I'll just make sure to repeat my notes to them and tell them I have chemobrain :)

I scheduled myself a massage for Thursday afternoon, I figure I might as well do it while I can and while I'm not worried about another friggin' scar and the pain associated with it. I can never have too much relaxation in my life lately, so bring it on! As I typed that, I realized that I was clenching my teeth, damn stress!

Today I decided to pop into work and say Hi to everyone since I don't know when I'll have time to again, since I probably won't be driving for a while. It was good to see everyone, and I got to meet with our CEO to catch up, I totally convinced her on purchasing a Nintendo Wii for our office! I think Nintendo should start throwing some cash my way since I'm like the Wii pimp these days! We have one of those giant projection screens which would be awesome for Wii, so hopefully in the next few weeks they'll have gotten one! :)

Me and Mandy were supposed to play tennis today, I got to her apartment, and we even changed into our tennis gear (aka sweatpants, ha ha!) only to find out these other guys were playing, and they ended up playing for a few hours, so tennis was a no go! Oh well! We got manicures instead, and then went and got some dinner. When we got back to her apartment Jeff and Scott were there so we all got to hang out for a while. Good times.

Hmmm what else....? I guess that's really all that's going on with me lately. I'm scheduled for surgery on Friday, surgery starts around 10:30am and I have to be there for 9am, dad is going to take me. I'm trying to decide if I'm going to go to my parents house on Thursday night so that my car is there or if I should just have him pick me up at my apartment like planned. I'll figure it out probably on Thursday. But I'm definitely going to at least get my massage before I leave :) I'm hoping it'll help make my body feel a lil better too, maybe help me heal better after surgery too since my blood will be moving better and stuff. Speaking of blood, I'm kind of mad at myself for being such a bitch and getting my port out so quick since I'll probably be doing a bunch of blood work and have IVs and stuff for surgery, damnit! I'm planning on most likely having some giant IV bruises, sad lamb! Oh well, shit happens!

Okay, well that's all I got...I think...I feel like I'm missing stuff, but I can't think of what. Sorry everyone, I've been really bad at returning emails and phone calls this week, I'll try and get better soon, or just keep stalking me and eventually you'll get a response. I hope everyone is well!

XO!
PS - One kinda creepy, morbid thing....I'm thinking about writing something incase I die during my surgery, or become brain dead, since those are some of the possible side effects... I was told 1/1,000 people die from this surgery, and well if you think about it, what's the statistic of people getting Hodgkin's -- pretty low (okay I just looked it up, an estimated 8,190 people will be diagnosed with Hodgkin's Lymphoma in 2007) -- so in the grand scheme of things, it really is a freaky possibility that I could be the 1 out of 1,000... and just for the record, if I become weird and freakishly brain dead, I would rather just have the plug pulled. If there's no hope for me to feel normal, know what's going on, etc, what's the point in living. So anyways, as morbid as it sounds, I might write something, but I'm not sure what. Just thought I would share, sorry for the creepiness.

Tuesday, September 18, 2007

Checking In

It's been a few days since I've posted. I've kinda been in a funk and have just been frustrated with the people around me lately. You always hear about these people who get sick and have the most amazing friends that really help them get thru everything, but I've recently realized that it's not always the case in real life. People have other shit going on, and sometimes it just feels like you're a nuisance when you want to go out and have fun and keep your mind off of some things. Sometimes I feel like I've used up all of the sympathy from my friends and I've only got family to rely on. It sucks to be 25 and have to rely on your parents to take you to you doctor appointments and surgeries, and all of that crap. I feel like I'm too old for needing them as much as I do. So yeah, I haven't written because I didn't want to come off as a giant jerk, so I waited a little while to post.
I am glad that Bekah has recently moved nearby, we had dinner last night and it was great to hear the same things from someone who gets it. We're going to try and do something this week if we can. Here's a picture of our dinner last night


Anywho, I don't really have much else to report. My skin is back to being itchy. I'm super tired lately and actually slept until about 4pm today, and was still tired. But I did make myself shower and get out of my apartment for a little while. I think I'm going to sleep late again tomorrow, but I did want to try and stop by work and say hi, I meant to call and check in today, whoops. I just had a mini Wii bonanza with Pat, we decided that boxing is an insane aerobic workout!!!!! Tomorrow I'm going to try and play real tennis with Mandy after she gets out of work. Should be funtastic. It'll only be the second time I've played, but it's been so cool and comfortable lately, I might as well take advantage of it - especially since I've been pretty lazy lately - AND because I probably won't be able to play for a while after surgery - and maybe even Wii, I'll have to ask to doc that!!! I also want to get a massage this week if possible, I'm going to try and call tomorrow and see what I can do.

Okay, I'm going to get going for now. Sorry I've been such a blog slacker, and thanks for the comments.

XO

Sunday, September 16, 2007

Five ways to help a friend with cancer -- even if it scares the crap out of you

I'm due for an update, but I'm not in a big writing mood at the moment, I feel like I'm in a pseudo cancer bi-polar state, up down, yadda yadda. Anyways, I was sending Skye (another hodge fighter, who is on her way to SCT --- and is also originally from Western Mass, small world, eh!?) an email about informing her friends and family about what to do with her during treatment, and how to inform them of her restrictions (fresh flowers and raw foods mostly) -- and it made me think about an article I read a few months ago, and actually now since I'm in cancer limbo, it might be good to share with you all as well -- and no, I'm not asking you to come do my laundry, but ya never know, even if this isn't a relapse, it's got some good tips for the next friend or family member that gets hit with the big C.

XO

*****


Five ways to help a friend with cancer -- even if it scares the crap out of you
By Kelly Corrigan

I bet you know me. I'm the friend who bought you a really funny birthday card, but when your big day came around I couldn't find it, so I whipped off an e-mail instead. Oh, and when you called, I meant to ask about your mom's knee surgery, but I started blabbing about how I got another freakin' parking ticket. Then I volunteered to bring homemade cookies to the team party and showed up with a box of generic vanilla wafers instead.

In the cosmic accounting books, I'm minus one to just about everyone I know.

So I would have understood if my August 2004 diagnosis of Stage III breast cancer failed to elicit waves of support. But all my pathetic and heartfelt apologies must have paid off, because there I was, floating in a sudden swell of kindness as I stared down a 7-centimeter tumor.

At 36, I was the first runin for most of my friends with the turbocharged Hummer that is cancer. So I went easy on the ones who unintentionally made things worse -- like by asking if my two young daughters were now at increased risk. But for the sake of your friend who has cancer, or may have it someday, let me share some advice. (Names and details have been altered to disguise the identities of the loving and well-meaning, except in the case of my husband, whose name is Edward Lichty and who has already apologized for himself.)

Remember, most of us don't look good in yellow.
Lance Armstrong can trigger feelings of inadequacy in the best of us. Even his heroic name, straight from a Dickens novel, can make a girl feel puny and defenseless. Although I enjoyed reading about his ordeal and all those yellow jerseys after my treatment was over, early mentions of him made me wonder if I really had what it took to conquer the beast, or even if I deserved to win. After all, I'm just a mom who writes a local newspaper column. I don't have the endurance to win the Tour de France -- I can barely get through Pump class down at the Y.

My husband picked up Armstrong's biography while I was in chemo and read it in three extended, obsessive sittings (when he could have been pampering me instead), only lifting his head to make the occasional remark, like: "Boy, Lance had it so much worse than you do. He had to do chemo 5 days in a row." The fact is, Lance Armstrong's legendary fight against testicular cancer relied on a very specific blend of chemotherapy drugs that are as relevant to today's breast cancer patient as a lobotomy. Which brings me to a larger point...

Avoid comparisons.
You know, like: "My friend's neighbor's sister had breast cancer 5 years ago and now she kayaks to work and competes in kickboxing!" Every case has elements that make chemo more or less effective, that make surgery more or less imperative, that make survival more or less probable.

Play Godfather.
Back in the '70s, Marlon Brando delivered the line "I'm going to make him an offer he can't refuse," which is now the motto of all self-respecting mobsters and salesmen -- and is also a good rule of thumb for the friend of the breast cancer patient.

An example of an offer that can't be refused (which is the opposite of saying "Please let me know if there's something I can do") was when my friend Katy sneaked over the week before Halloween to decorate and brought a jack-o'-lantern, a couple bags of Snickers, even fuzzy fake bats. If Katy had called to ask if I needed anything, I probably wouldn't have asked her to carve a pumpkin for me and stretch cobwebs on the bushes. But when what you need is a normal life, it's hard to put it into words. Which is why I loved Katy's gesture -- for the simple reason that it meant my kids didn't have to have a mom who was sick and miss out on Halloween too.

Add life.
Remember in E.T. when the potted flowers turn brown and die? Cell warfare doesn't leave much time for chores like scrubbing the bathtub or weeding. So where my flower beds used to sing out to me about the exuberance of life, during my treatment they became an unavoidable symbol of decay.

What can I say? Cancer turns everyday things into existential symbols. Dirty laundry, dust bunnies, and empty refrigerators quickly become images of disorder and loss of control. So snip off spent blossoms, water her plants. Drop a bag of groceries on her front porch. If you can swing it cash-wise, send over a housecleaner -- preferably on a chemo day so she has no choice but to accept.

Say anything.
If you're still hesitant to reach out, remember: Simple, even clich, is totally fine. "I'm thinking of you" never gets old. "That cancer doesn't have a chance against you" is empowering. "I'm rooting for you" feels good.

Some of the most fortifying messages were from friends I hadn't seen in forever or people I'd recently met. And I particularly appreciated the cards I got once treatment was well under way and the game started to drag a bit. It took me the better part of a year to get rid of that tumor, and every time I looked up in the stands, even in months 7 and 8, there they were: a handful of devoted fans, on their feet, who weren't leaving until the ref lifted my arm in victory.

Whatever you do, don't let the idea of perfection stop you. Sure, there's a card out there that's just right, but if you can't find it, or you lose it, an e-mail works too. And I promise you, generic vanilla wafers, given with love, taste just like the real thing.

Thursday, September 13, 2007

Surgical Consult Update


Here's my latest update... we're moving forward with my biopsy. There are 2 spots on my chest, one near my thymus and one somewhere to the right of it (mediastinum region?). The surgeon said that doing a biopsy of the thymus could be tricky, so we're going to try to avoid it since it's more invasive, and plus the thymus could just be being funky from chemo. So we're going to biopsy the spot to the right of it. We're scheduled for Friday the 21st, and it's day surgery!! HOORAY, no sleeping in a scary hospital! I'm going to get totally put under for this operation, and she said sometimes it's hard to get at Hodge Nodular Sclerosis nodes because chemo makes them really hard and it could take 2-4 hours or even longer!! WOW!

I'm going to get an ECO next week and meet with an anesthesiologist for a pre surgery consult.

The surgeon also made sure to mark on her notes that they're not allowed to give me full oxygen because of the bleo, so that was reassuring that she really knows her stuff. She talked with me and my parents for probaly 30 minutes, walked us thru my scans, and compared them to big pictures of the chest that we on the wall.

It sounds pretty scary, and of course depressing since the hodge could be back, and I'll have another knife fight scar :( but I feel like I'm in pretty good hands.
That's all for now!!
XO

Wednesday, September 12, 2007

Got Cancer?

I've been getting a good amount of emails regarding my blog lately, and was pleasantly surprised to get one from Larry Mull who runs http://www.gotcancer.org/ (which is also linked on the side of my site). He said he noticed that I have sent him a few folks over to his site and said as a thank you that he's going to send me a free shirt, which is super nice of him! So I thought maybe I could get you all to help me pick a design that I should get, I've got a couple in mind, but I thought it's always good to get ideas from my cancer fighting pals...plus maybe you'll even like something for yourself and buy something! Oh and Ry Ry, I haven't forgotten about you, I need to take a picture still for you, maybe in the next few days I can get one with me and my parents rocking our chemopalooza shirts! (Hint: Check out both sites as they're hilllarious!)

Anywho, thanks Larry for the offer and I'll be getting back to you shortly on my choice! :) Oh and Jon, did you get your shirts yet too?

I go tomorrow for my surgical consult, stay tuned for updates, and thanks Aaron for the tips on parking!! :)

XO

Tuesday, September 11, 2007

I'm Sleepy!!


You know it's funny how going thru chemo really makes a girl appreciate a nice hot shower, ya know, without globs of hair falling out! I'm back at my apartment for the next few days. I came back late this afternoon, I slept until almost 1pm today, and could have slept for another 5 hours, I couldn't believe how exhausted I am!
I had to drive to Boston to NEMC to pick up some medical records for the surgeon, I actually haven't looked at them yet. I had to go all over the hospital to pick stuff up, and then had to wait to have stuff burned onto a disk, so I was there for about 2 hours, blah. I went to say hi to the chemo nurses today, hoping that Paula had worked her day off for some random reason, but of course she didn't, so I just said hi to a few other nurses, it was actually pretty empty when I stopped by. I gave them the update that I feel like it's specialist time and I'm working on switching to Dana Farber. I was telling them how stressful it's been and how I'm thinking the hodge has returned, and how my onc at Dana Farber even brought up the possibility of a SCT, and one of them said "Oh a SCT isn't that bad," which is interesting, since I've read about lots of folks and their SCT's and it hasn't exactly been awesome. I'll leave it at that, interesting...

Tomorrow I'm going to get my CT scan at Brigham and Women's hospital (they're associated with Dana Farber), and then Thursday is the surgeon appointment. I gotta get up super early because silly me, I forgot to register so I don't have a card, and I have never been there so I have no clue where it is -- of course, I'll look up directions online as well!

I've recently noticed that I'm keeping about the same number of daily hits (about 50ish) on my blog, but I'm noticing more of them are located in Massachusetts, so thanks friends and family for reading more often! Now I have a question for the Boston-ish folks, anyone have a good PCP that they think I should go to? I really need a new one. I thought I had officially switched to one at NEMC, but it turns out whoever I talked to in the general medicine dept was not so smart, and actually chose a primary care doc for me that ISN'T a PCP, she's actually a geriatric doctor, ya know for old people!!! And she's already canceled an appointment on me to meet her. I didn't find out that she wasn't officially my PCP until I called Blue Cross and they told me she wasn't one...anywho, long story short, I really need a new one for when I get simple stuff like colds or for my referrals. So if you have any suggestions drop me an email (kelly dot kane at gmail dot com).

One randomly exciting thing I heard yesterday was that my work has finally gone officially "casual" with dress code. It's music to my ears because I have no work clothes that fit me, but I did just order 2 new pairs of jeans, sooo when I actually do go back, I won't have to break the bank and buy tons of new clothes, in fact maybe by then I can lose some weight and fit back in my old stuff :) Oh and of course, that means I can wear comfy shoes all the time!!

I feel like there's more I need to post, but I really can't remember right now. So I guess it's almost bed time. I should pop an ativan or something so I can make sure to get some restful sleep. Oh and again, thanks everyone for the birthday wishes. Oh and Susan, thanks so much for the card!

XO!

Monday, September 10, 2007

My Mom Is Obsessed!

So last night I went out to dinner with my parents and also got my birthday present, a Nintendo Wii!! I kinda had a feeling I was getting one, but the funny thing, my mom is obsessed with it now!! We played mostly bowling last night, for about 3 HOURS! Our system only came with one controller, so we would have to keep switching back and forth for our turns, and she says, by noon tomorrow we'll have another controller, this is bullshit. Even better...when I woke up this morning she had just gotten home from the store, with...another Wii system! HA! It was like a package deal, so it was cheaper, and it came with another game. So me being the practical girl that I am, says ok we gotta pack the other one up to return it...mom says, well umm maybe I want this one for me, or for Block Island...so yeah, we now own 2 systems!!!! HA HA HA!

Sunday, September 9, 2007

Happy Birthday Sparkle!


Today is my birthday, I'm officially 25, holy shit!

Here's my story from last night....

Lynda and Julia planned to have a few work friends come meet us at a piano bar in Boston called Jake Ivory's. The master plan was for everyone to meet at Julia's since she lives the closest to the city, then we were all going to take a bus there so no one would have to drive. So I get there at 8:30 and we were waiting for Lynda and Jordan to come there, we waited for HOURS! We kept calling and no one would call us back, ugh! Then we finally got ahold of them around 10:30, and they were on their way to the bar!!!! Jeff and Mandy got to the bar around then as well, so pretty much everyone was celebrating my birthday for 2 hours WITHOUT me! By the time we waited for another girl, had a drink with her and sucked more time out of the night only to find out she changed her mind last minute and decided to not come, it was about 11:15, and we still had to either get a cab or catch the next bus! **FYI the bar closes at 1:30!** We finally caught the bus, but didn't end up getting to the bar until 12, so it was officially my birthday when I got there. I'm not going to lie, I was pretty much about to burst into tears by the time I got there, I vented to Mandy and Jeff and felt a little better, and sucked it up and got myself on a mission to having fun.

So anyways, back to fun. This guy Cody that started working at my work while I was out, I only met him briefly a few times, well he was soooo nice! Lynda told him that we were planning on going to this bar, and he said that he used to work there and his roommate is the manager there...SOOO they got us some VIP treatment! They reserved a table for us, took us in the back door, got us some free shots, and then escorted us to our table! Cody even met us before the bar closed. We also got to stay for a few hours after the bar closed, and they gave us free drinks! I was so shocked how someone who hardly knows me did all of that for me, and yet a lot of my actual friends didn't even make an effort to celebrate with me. Also, before we left he showed me a tattoo on his back that was the breast cancer ribbon with his mom's name who is done with cancer, it made me think there really are such caring people out there!

The piano people sang happy birthday to me too! And I even got hit on by some guys from Indiana that were on vacation, yay for self esteem! About an hour after they announced it was "Kelly Kane's 25th Birthday" over the microphone's, they said happy birthday to Sparkle, and one of the Indiana guys came running to me and screamed, "Sparkle, it's your birthday!!!!" It was really funny! Oh and I wore a tank top and told everyone that I met that my scars on my chest were from fights, HA!

I'm now on my way to the shower and then am going to drive to my parents house for dinner or something.

Oh and I'm pretty sure I haven't written about my spa day yet - it was fabulous! I thank you again Wullie and Veronica, and I thank you Sandy for the nice card!

As for a mini cancer update, I've got my CT scan scheduled for Wednesday and my appointment with the surgeon on Thursday to discuss if we can even get at those pesky nodes! Oh and my skin is being super itchy again, WTF!

Anyways, I gotta go shower, oh and I'm exhausted!

XO

Thursday, September 6, 2007

My Ramble

Not much of an update but thought I should post something so you know I didn't drive off a cliff or something. I've been trying to keep really busy, because if I don't keep busy and have time to think about things, I drive myself crazy. Yesterday I went to Northampton and hung out with Greg for a while. We walked and shopped and had fun. I bought some random stuff to entertain my stressed-out-self, I also tried on some funny wigs with Greg -- who is bald, so ya know, maybe we'll be twins. But there was this one wig that was a short bob with short bangs - it was a dark redish, brownish, funky one and it looked pretty good, but also funky crazy. It wasn't that expensive, but I really need to find that store that Jess bought all of my funny wigs at because they were super cheap and only $5 each. I bought a cute hat, incase I need a hat. I totally forgot about the cool shopping and bargain prices to be had in Northampton. I also bought Greg a funny mustache and ummm a cute headband....oh yeah and one of those eye packs, ya know the ones you can put in the fridge to de-puff your eyes when you cry a lot. I dunno, I think that's mostly what I bought there, but we walked a lot and did a lot of browsing and then grabbed some sandwiches. I then hit the mall on the way home since I decided the pants I always wear (aka my fat pants) make me look fatter than I actually am, so I went to try on some new jeans, but of course they were all too long, so I gotta order them online to get em short enough. I did however buy myself a new purple tshirt and sweater, I decided purple is my new favorite color to wear this fall :) Oh AND I bought myself new shampoo, it smells like honey, might as well while I can, eh? The best part is, the girl at the store was so happy that someone had come in - she said I was the first person to come in in the past hour...so anyways, she gave me a discount just because she thought it was a pain in the butt that they didn't have the same sized shampoo and conditioner! HA! AND she gave me a free card to get 10% off everytime I go there, which typically you have to buy once a year for $10, but nope she gave me it for free just because! And then I told her that my birthday was this weekend, and she said, Oh even better! HA! So yeah, some good productive retail therapy. Judy even got me a gift certificate for the Gap so I'll order my jeans soon :) Oh and I finally got my next LTD check and I got the Leukemia and Lymphoma check -- it was supposed to be $500 but it was $438, so I gotta find out what happened and figure out what to submit to get the rest of the money from. But still, yay! Big weight off my shoulders!

Oh and tonight I went out to dinner with Nicole, and then we went and got her some fun new makeup and then made ourselves look ridiculous at Sephora. We put on bright lime green and bright blue eye shadows, I'm sure the people that worked there hated us, we were acting like 15 year olds.

Anywho, I'm off to bed shortly. I've got to get up at a reasonable hour so I can go to my spa day at 12:30!! Oh and I gotta go to NEMC tomorrow to pick up scan stuff....I still haven't heard from the surgeon at Dana Farber yet, so hopefully she calls me tomorrow.

One more thing I have to share that really made my day so much more difficult today. So I had been pondering switching to Dana Farber for the past few weeks, just because now I feel like I'm in specialist territory now with all of this funky PET scan business. So when I met with Dr. Fisher on Tuesday and heard his concerns, I decided that I needed to make the switch, not because I hated my oncologist at NEMC or because I didn't feel like I getting taken care of -- because I knew I was, and I knew they really cared about me there... but I just felt like I needed an oncologist that has a lot of experience with Hodgkin's. I feel like I need somewhere that has lots of money and resources because I'm fighting for my life, damnit! Anyways, Tina called me back this morning, and she seemed like she was mad at me for switching hospitals. It really hurt my feelings and made me start off my day terribly. Everyone I had talked to said she would be fine and wouldn't be offended, but it really didn't feel that way, and it just hurt, a lot. I really hope we can still stay close, and it had nothing to do with her, it had to do with me fighting for my life.

Hopefully tomorrow will be a little better of a day.


XO

Tuesday, September 4, 2007

Thoughts Running Around My Head


This occurred to me today that I was diagnosed with the Hodge on December 21st, 4 days before Christmas, starting chemo a week or so after the new year. Now, there's a possibility of a relapse, and I get this information 5 days before my 25th birthday! Am I ever going to get a break!!? What did a do to make this happen to me, damnit!!! I had been waiting for my 25th birthday during chemo, because I knew I would be done with everything, free and clear!!! Well fuck me!

And then yesterday I went to Meg's wedding reception - she's a year older than me and has been with her now husband for 5 years, then I see people I grew up with, 1 is married with a 5-month old, one is engaged, and then later that night my dad told me that one of my ex's is either married or engaged as well -- the kicker, to a girl he dated RIGHT after me. WTF! I really don't want to have this cancer business anymore. I feel like life is passing me by. I don't want to be a spinster for the rest of my life! I want to have kids someday -- but can I if I have to have a transplant? Should I have not focused on my career after graduating college and just looked for mister right? Was it the stress of trying to break into working in PR that gave me cancer? Was is because I lived and worked in Woburn where there was a huge cancer outbreak 30 years ago? (more articles online if you search for Woburn and cancer or cancer cluster or A Civil Action)

I'm just so frustrated about everything! My eyebrows are finally starting to look normal again, and I didn't lose all of my hair during ABVD, but I sure will if I do a transplant :( I just hate everything today!!!!!!!!!!
XO

Shitty Day

This morning I went to Dana Farber to talk with my hodge guru/second opinion onc about my scans from earlier this month and he was concerned. He wants to move forward with the biopsy of one of the nodes in my chest. He said usually people who light up with post chemo PETs are either better or have shown improvement by the next month -- but not me, I went from 1 spot to 2! :( He even brought up the possibility of a SCT (stem cell transplant) !! Then after me and my parents left the hospital my mom picked a fight with me and we're not talking now! It's been such a shitty day, I'm going to take some Ativan and take a nap. Just thought I would share the latest news.

Monday, September 3, 2007

I'm Baaaack!

I'm back from Block Island, and what a stressful weekend it was! I decided I'm going to have to post a Kelly Q&A because everyone I see asks me the same damn questions over and over, and if I see a few people I haven't seen in a while it's like 4 hours of cancer questions, which is just really painful for me. I don't mind talking about stuff for a little while, like maybe 10 minutes, but I don't want to hear the same questions over and over OR hear about your friend that had breast cancer, or your relative that had cancer and died! Come on, I'm in cancer limbo and I don't need to hear about cancer 24/7! I know you probably would have talked with me about work or something, but since I'm out of work, there's not much to discuss - that's okay! Let's just look at scenery or talk about stupid movies, or just have BS small talk!

So I'll be posting the Q&A and an update on my weekend soon, maybe when I have my own computer (it's at my apartment). I'm heading to Dana Farber tomorrow with my parents (hopefully he'll give us some more insight) and maybe we'll stop there on the way back - or I'll just go at some point later this week. Oh and I'm sick, I've either got a cold or really bad allergies - booooo!